CS Lewis "Hardships"

Dave is amazing. He knows what I need to hear, at the exact moment when I do.

When I was at work today, he sent me this. It's a quote by C.S. Lewis (British Novelist/Poet). 

Any hardship that comes, we will face it together. We will build an amazing future and keep moving forward. This is a bump in the road, not the end.

Jumping Back In

I never finished that last post. Life picked up at an alarming speed.

Colin turned ONE and has been absolutely keeping us on our toes. He's changing every single day and sometimes, it's hard to even keep track of all the new things he's learning. 

(I'm doing this on my phone, so I'm pretty sure that picture is massive - sorry)

The reason I'm updating is because I've decided that I'm going to begin to update this regularly again (or as much as I can with a toddler, ha).

I don't think in the last post that I put that they put me on a new drug in the hospital along with the Lamitrigine ER. I'm now also taking Zonisamide 100mg 2x daily. It's funny I tell you this now because my neurologist and I are going to discuss me switching to something else on April 6th.

Since being on it, I've dropped 30 lbs (this sounds like something weird to complain about but when you're losing 3 lbs a week for no reason, it's scary), my hair is falling out in clumps and I'm still having PNES episodes. They happen probably about every 4-5 weeks and are brought on by stress. Definitely time for a change.

I'm scared to change again. I don't want to switch and have another seizure. I can't go through that. I can't put my family through that. But, my neurologist (or at least Nurse Gary) seems really confident that the Zonisamide is the root cause for the PNES episodes and all he other symptoms and once I switch, that it will all stop.

I really am crossing all of my fingers and toes on this.